Rare Disease Day takes place on the last day of February each year.
The main objective of Rare Disease Day is to raise awareness amongst the general public and decision-makers about rare diseases and their impact on patients’ lives.
The campaign targets primarily the general public and also seeks to raise awareness amongst policy makers, public authorities, industry representatives, researchers, health professionals and anyone who has a genuine interest in rare diseases.
DEBRA Australia is proud to support Rare Disease Day and help raise awareness for Epidermolysis Bullosa in Australia and the world along with the help of the international DEBRA organisations.
You can also do your own part to help raise awareness, head to the Rare Disease Day website www.rarediseaseday.org, read up about the event and spread the work to your friends, family and community.