EB-CLINET and DEBRA INTERNATIONAL Conference 24-26th September 2015 For the first time, EB-Clinet and DEBRA International conferences were held at the same time and have shared one day of the programme. This resulted in a record breaking attendance to date, both in terms of delegates and countries represented, with over 320 delegates from 35 countries [...]
A big congratulations to Nigel Holley being the lucky winner of the DEBRA Australia Art Union!
The EB Camp 2015 Program is now available for download! To all of the families who will be attending the EB Camp at Pelican Waters between the 11th - 13th September follow the link below to download your copy of the program. Page 10 of the program is titled "Where to from here?", if you [...]
We are inviting people with Epidermolysis Bullosa (EB) to take part in a survey to better understand how wounds and scars heal after surgery. If you are willing, have EB and are 16 years of age, we ask that you kindly fill out a one-page questionnaire about your experience after having surgery. If you are [...]
Make sure you're watching the AFL Footy Show next Thursday the 6th of August as DEBRA Australia Ambassadors Brock McLean and John Platten - two AFL greats, will be on the show talking about DEBRA Australia and helping raise awareness of EB. The usual broadcast time is 8:30pm but make sure you check your local [...]
DEBRA Australia is pleased to announce its new Ambassador, Matt Bevilaqua. Matt Bevilacqua is an Australian Ironman and DEBRA Australia Ambassador who also suffers from EB Simplex. Despite struggling with the condition Matt's Ironman career has been a rollercoaster; first competing in numerous state teams for Tasmania and when he was just 16 years old [...]
On SUNDAY 15th of February 2015 a High Tea and Movie Fundraiser is being held to help raise funds for DEBRA Australia at the Capri Cinema in Goodwood, South Australia. The movie this year is Unbroken, the amazing true story film about Olympian Louis Zamperini, who after a near-fatal plane crash in WWII spent a [...]
The final tally has been calculated for the Sweetsol Dinner Dance that was held at the start of December. The night ended with over $18,000 raised to help families in Australia living with EB, an amazing effort! On behalf of everyone from DEBRA Australia we would like to thank everyone that was involved - all [...]
Rare Disease Day takes place on the last day of February each year. The main objective of Rare Disease Day is to raise awareness amongst the general public and decision-makers about rare diseases and their impact on patients’ lives. The campaign targets primarily the general public and also seeks to raise awareness amongst policy makers, [...]
We are pleased to announce a new ambassador for DEBRA Australia - former Australian Rules Footballer, John Platten. During his time in the AFL John carved an illustrious career - first, winning a Magarey Medal in 1984, then with the Hawthorn Hawks team of the late 1980s and early 1990s winning four Premiership flags as [...]