We are so pleased to share this incredible article featuring our very own Ambassador, Matt Bevilacqua, for Men's Health! "When I was 16 I became the youngest person at the time to win the Tasmanian Open Ironman title – a race I went onto win three years in a row. From there I moved away [...]
We are very pleased to announce that the VIRTUAL DEBRA International Congress will be held 16th - 19th September! This is the world's largest conference on EB, connecting hundreds of experts in research, healthcare professionals, clinical management, and the EB community. This exciting event features; workshops and roundtables, 30 invited speakers as well as opening and closing [...]
Get involved, join our team and Run for EB… #teamdebra More information coming soon!
Jessika is a happy, smiley and sassy 11-year-old who loves her friends, family and dog, Coco. She enjoys crafts, drawing, shopping, talking to her friends and watching Netflix. Jessika also has a specific type of EB which is linked to Muscular Dystrophy. As a result, she is mostly wheelchair bound and will eventually be [...]
TEE OFF 4 EB 2021 - Wrap Up Our 2021 Tee off For EB golf event raised just over $15,000 for DEBRA Australia and our life changing programs! The day started off at lunchtime, with all our players hitting the course in perfect Sydney weather! Throughout the day, our players competed in a range of novelty events [...]
The DEBRA Australia Professional Counselling Program is here to support the patients, families and carers as they manage life with EB. Experiencing a diagnosis of EB can be very distressing and many will benefit from professional support to help manage the challenges living with EB presents in everyday life. Clinical Psychologists can work with you [...]
The 2021 Tee off 4 EB Golf Day is FAST approaching, to be held Fri 28th May at Mona Vale Golf Course! Check out the video below to get a taste of what will be on offer throughout the Golf Day & Dinner. To register your team, or to purchase tickets to the [...]
We have already had significant interest in Tee off for EB 2021. Get in QUICKLY to secure your team for this highly anticipated event. It is set to be a fun filled day at Mona Vale golf course, featuring: Novelty golfing competitions throughout the afternoon A sumptuous 2 Course dinner - Click here to buy dinner [...]
Chris O’Brien who is the Chair of The Quilters’ Guild of South Australia, met an EB family 10 years ago and was determined to make a quilt to raise funds for DEBRA Australia. Some years later with a collaborative approach, the beautiful quilt came to fruition and was named Paws for a Cause. It included [...]
