Connecting you with EB Professionals

DEBRA Australia makes every effort to ensure that our EB community has the most up to date information and appropriate support services. We acknowledge that living with EB can be difficult, so its important to be able to speak with someone who understands the mental and physical health challenges that this painful genetic disorder can bring.

Our EB Care Contacts list includes registered EB Professionals from across Australia that can help you with queries and solutions for managing the symptoms of Epidermolysis bullosa (EB) and its related group of skin conditions.

While we manage this EB Care contact list regularly, please notify our team of any errors or updates by emailing admin@debra.org.au.

 

State Location Contact Phone Number
Queensland The Queensland Children’s Hospital EB Nurse – Bonnie McNiell (07) 3068 2045

(07) 3068 1581

NSW St George Hospital Kogarah NSW  Professor and Head of Dermatology – Dedee F Murrell

(02) 9113 1111 (Hospital)

(02) 9113 2543 (Prof Murrell Office)

Sydney Children’s Hospital, EB Clinic, Randwick Sydney, NSW. EB Clinical Nurse Consultant – Rebecca Saad (02) 9382 0389

Pager 46562 via Switch: (02) 9382 1111.

Sydney Children’s Hospital, EB Clinic, Randwick Sydney, NSW. Dr Artiene Tatian – Dermatologist

(02) 9382 1111

Via Dermatology Registrar

 Victoria The National EB Dressing Scheme, Independence Australia Melbourne VIC Program lead (NEBDS) 1300 290 400
Royal Children’s Hospital, EB Clinic, Melbourne EB Nurse Consultant – Lauren Weston (03) 9345 4803

0427 937 699

or via Switchboard:(03) 9345 5522

The Royal Melbourne Hospital EB Clinical Nurse Consultant – Holly Ferguson (03) 9342 4531
South Australia Women’s & Children’s Hospital, North Adelaide Dermatology Nurse Consultant – Emma Baker (08) 8161 7000
Head of Dermatology – Dr Emma Ryan (08) 8161 7000
Western Australia Princess Margaret Hospital for Children, Perth Clinical Nurse Specialist, Dermatology – Jenny Irvine (08) 6456 4978

0436 595 161

Dr Anne Halbert (08) 9340 8222

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