Here are some useful resources and products suggested by EB Families and Supporters in Australia:
If you have any products you think we should add to the list, contact ebfamilysupport@debra.org.au
- COVID-19 Vaccines & EB
- Crawlings: Infant & Toddler Knee Pads
- Tips for EB kids starting school
- Cooling bandages Great to use for EB patients during physical activity
- Bandage/dressing cutting guides: guide 1, guide 2
- DEBRA International Clinical Practice Guideline
- DEBRA International’s clinical practice guidelines for skin cancer management in EB
- KicKee Pants – Butterfly Babies Clothing Range of clothes for children with EB.
- DIY Knee pads (for crawling babies).
- Bugaboo Bee Air flow pram for EB babies.
- Silver Socks For EB Simplex use & keep feet cool. Are imported from the UK & supply adults & children.
- Gelclair is a viscous oral gel designed to aid in the management of lesions or ulcerations within the oral cavity.
- Skinnies Web Range of dressing retention garments for patients with EB.
- Shoes for people with EB
- NEBDS Wound care and dressing technique videos
– Hand Wrapping Bandaging Video
– Finger Wrapping Bandaging Technique
– Combined Finger and Webspace Bandaging and Distraction Techniques
– Newborn Hand Bandaging Techniques
– Soft Polymer Putty Hand Splints