Nurses attending the EB Health Professionals Symposium in Brisbane 2024

Our EB Nurses are particularly dedicated and committed to providing much needed support and facilitation of the EB Clinics at the hospitals and externally. The program continues to evolve from 2010 as we identify the needs of our families to ensure better quality of care. Our nurses care for newborn babies and their families on a national basis.  There are many outpatient appointments organised with the nurses liaising with all of the multidisciplinary health care team to maximise care outcomes. 

Our EB nurses are also actively involved with the NZ ANZEB nurse group and regularity liaise with other EB nurses overseas to provide latest advice and support to patients. DEBRA Australia is proud to support continuous education of our EB nurses via our Travel Fellowships and annual Health Professional Day enabling nurses to get latest training and education both overseas and from specialists nationally. Together this ensures that they can provide EB families with the most up to date information on wound management and best practice clinical guidelines developed by DEBRA International. 

The nurses provide advice to families, pre-school, primary and secondary school communities as children transition into and through their education years.  

This program extends beyond hospitals to in home nursing support – to read more about in-home nursing support click here. 

We are pleased to have dedicated DEBRA EB Nurses funded and supported in the following locations:  

DEBRA funded EB Nurses 

  • Holly Ferguson (Adult/Transition EB Nurse Consultant)
    The Royal Melbourne Hospital
    Days of Work: Monday and Thursday
    Telephone: (03) 9342 4531
    Email: EBNurse@mh.org.au (or rmhderm@mh.org.au on other days).
  • Bianca Mirco (EB Clinical Nurse Consultant)
    St George Hospital Sydney
    Days of Work: Thursdays and Fridays
    Email: bianca.mirco@health.nsw.gov.au
    Mobile: 0499 687 736 


Partially DEBRA funded EB Nurses
 

  • Rebecca Saad (EB Clinical Nurse Consultant)
    Sydney Children’s Hospital Randwick 
    Days of Work: 5 days per fortnight
    Telephone: (02) 9382 0389
    Email: rebecca.saad@health.nsw.gov.au 

 

Previously Funded Nurse Positions 

  • Lauren Weston (Paediatric EB Nurse Consultant)
    Royal Children’s Hospital Melbourne – Dermatology Department
    Days of Work: Monday to Friday 8am – 4.30pm
    Telephone: (03) 9345 5135 Mobile: 0427 937 699
    Email: lauren.weston@rch.org.au
  • Bonnie McNeill (EB Clinical Nurse Consultant)
    Queensland Children’s Hospital 
    Days of Work: Monday, Friday & every second Thursday 7am – 3.30pm
    Telephone: (07) 3068 1111 or Burns Outpatients Number (07) 3068 2830
    Email: Bonnie.McNeill@health.qld.gov.au 

 

Other Supporting Nurses 

  • Emma Baker (Dermatology Nurse Consultant)
    Women’s & Children’s Hospital Adelaide
    Days of Work: Tuesday, Thursday and Friday
    Mobile: 0435963861
    Email: Emma.Baker@sa.gov.au  

Our Nurse Program is mainly funded by the generous support of FGX and their shareholders. We are immensely grateful for their support which has not only allowed us to develop our Nurse program more quickly but also allowed us as a charity to have more stability in provision of this program over the years.