DEBRA Australia’s vision is to have a world where no one suffers from the painful genetic skin condition Epidermolysis Bullosa (EB) and our mission is to ensure that people living with EB have access to the best quality support and medical care, whilst also driving the effective development of treatments and cure for EB.
DEBRA Australia is committed to supporting families with professional and appropriate health pathways for the formal diagnosis of EB and future family planning. We aim to offer access to genetic testing and IVF treatment to prevent future EB pregnancies for families who wish to access this support.
Individuals and families requiring advice about linking into this service or would like to receive more information on available resources, please contact our National Family Support Coordinator, Simone Baird at simone.baird@debra.org.au 0413 967 609 or your relevant EB nurse.
In addition, we also have access to a number of services and programs below that may assist you.