What is EB?
Epidermolysis Bullosa (EB) is a rare genetic disorder whereby the skin blisters and peels at the slightest touch. Living with EB has been likened to living with third degree burns. It is very painful, and sufferers must be bandaged every day with dressings to protect and medicate their wounds.
For more information check out What is EB?
What Can You Do?
Latest News
EB research student presents at 2026 International EB Congress in Brazil
Thanks to DEBRA Australia’s EB research grant funding, PhD student Dhanya Shanmuganathan was able to present her DDEB research findings to an international audience of clinicians and researchers earlier this year. She was [...]
EB Education Forum to be hosted as an online webinar, in partnership with Wounds Australia
If you were unable to attend the EB Education Forum held last October, DEBRA Australia are pleased to share that, in partnership with Wounds Australia, we will be hosting the event online as a [...]
Deanna Pope is taking on an extraordinary challenge for EB families
Many in our community may know Deanna Pope as the incredible driving force behind Bubbles and Butterflies, and now she’s bringing that same passion to her biggest challenge yet – the EB Butterfly Walk [...]
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