What is EB?

Epidermolysis Bullosa (EB) is a rare genetic disorder whereby the skin blisters and peels at the slightest touch. Living with EB has been likened to living with third degree burns. It is very painful, and sufferers must be bandaged every day with dressings to protect and medicate their wounds.

For more information check out What is EB?

Make a donation and help DEBRA Australia continue its important work supporting the EB community.

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What Can You Do?

Share

Help us raise awareness of EB and what DEBRA Australia is doing by talking to your friends, family and work colleagues.

Do

Get involved by fundraising yourself throughout the year, or participating in one of our annual events such as the Dine and Donate campaign during International EB Awareness Week.

Donate

DEBRA Australia is primarily run by volunteers who all selflessly use their own time to contribute. That means when you donate to DEBRA Australia the money is going directly to help support the families in need.

Bequest

By leaving a bequest in your Will to DEBRA Australia you are helping us provide the support to EB families in Australia.

Latest News

Ruby’s ‘wildest’ dream comes true thanks to the Follow Your Dreams Grant
Ruby’s ‘wildest’ dream comes true thanks to the Follow Your Dreams Grant

News

Ruby’s ‘wildest’ dream comes true thanks to the Follow Your Dreams Grant

The most recent recipient of the Carmel Harris Follow Your Dreams Grant was Ruby. Here she recounts her incredible experience at Jamala Wildlife Lodge where her ‘wildest’ dream came true! [...]

Australian-first treatment of B-VEC announced at RCH

DEBRA Australia welcomes today’s announcement from The Royal Children’s Hospital Melbourne (RCH), marking the first use of beremagene geperpavec (B-VEC), also known as Vyjuvek, in Australia. Delivered at RCH through the Therapeutic Goods Administration’s Special [...]

Giving Beck and Judd a much-needed break

Thank you to our generous donors Orla and Michael, who gifted a holiday over Christmas, allowing EB mum Beck and her son Judd to enjoy an island getaway for the week. After the holiday, [...]