What is EB?
Epidermolysis Bullosa (EB) is a rare genetic disorder whereby the skin blisters and peels at the slightest touch. Living with EB has been likened to living with third degree burns. It is very painful, and sufferers must be bandaged every day with dressings to protect and medicate their wounds.
For more information check out What is EB?
What Can You Do?
Latest News
Australian-first treatment of B-VEC announced at RCH
DEBRA Australia welcomes today’s announcement from The Royal Children’s Hospital Melbourne (RCH), marking the first use of beremagene geperpavec (B-VEC), also known as Vyjuvek, in Australia. Delivered at RCH through the Therapeutic Goods Administration’s [...]
Giving Beck and Judd a much-needed break
Thank you to our generous donors Orla and Michael, who gifted a holiday over Christmas, allowing EB mum Beck and her son Judd to enjoy an island getaway for the week. After the holiday, [...]
DEBRA Australia honours long-time supporter Kenneth Stephens
DEBRA Australia would like to honour long-time supporter Kenneth Stephens and celebrate some of the incredible things he achieved in his almost 93 years. Kenny from Modbury Heights in South Australia took on many impressive feats [...]
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